Cancer care pathways
For an overview of what to expect during all stages of your cancer care, read or download the What To Expect guide for brain cancer (high-grade gliomas). The guide is also available in Arabic, Chinese, Greek, Hindi, Italian, Tagalog and Vietnamese – see details on the site. The What To Expect guide is a short guide to what is recommended for the best cancer care across Australia, from diagnosis to treatment and beyond.
Brain Cancer Action Week Forum
Presented on Friday 6 May 2016
This forum provided brain tumour patients and carers a chance to meet others in a similar situation and hear about developments in treatment. You can watch the presentations from the day below.
Topics discussed include:
- Developments in personalised brain cancer treatment
- Personal stories from patients and carers
- Practical challenges: fatigue, rehab, returning to work
- The latest in paediatric brain cancers and late effects.
- Psychological challenges: the caring role, living with uncertainty
The sessions were open to patients, carers or anyone interested in learning about brain cancer. For further support and information, please contact a cancer nurse on 13 11 20 or via email askanurse@cancervic.org.au.
| Topic |
Presenter |
Link |
|
Living High Grade - A personal story
|
Michelle Heaney |
View on YouTube |
|
The Sally White Lecture: Developments in Brain Cancer Treatment
|
Prof. Mark Rosenthal, Medical Oncologist
A/Prof. Hui Gan, Medical Oncologist
|
View on YouTube
View on YouTube |
|
Living Low Grade
|
Ben Leske
|
View on YouTube |
|
Panel Discussion: Getting Back to Life
- returning to work/study/life roles
- managing fatigue
|
Helen Kugler, Physiotherapist
Joanne McLeod, Occupational Therapist
Dr Lawrence Cher, Neuro-oncologist
Facilitator : Di Legge |
View on YouTube |
|
The Carers' Journey - A personal story
|
Cheryl Waye |
View on YouTube |
| Finding support when & where it's needed |
Dr Danette Langbecker, Researcher
|
View on YouTube |
Webinar: Cognitive effects of brain cancers
Presented on Tuesday 27 October 2015
Brain tumours of all types present a number of challenging issues, for people diagnosed and their families. In addition to the physical and emotional health demands of the cancer experience, other changes affect thinking and memory, personality, speech and an ability to find words in conversation.
Accessing quality information can ease anxiety and help people continue doing the things they want to do. In this webinar, expert presenters discuss the kinds of cognitive effects and the practical strategies for managing them. Topics discussed include:
- an overview of cognitive changes that may occur
- exploring issues such as fatigue, sensory overload, changes to cognitive processing, word finding and loss of speech
- practical suggestions about how individuals and their families can manage these changes
- how to access reliable information, helpful programs and resources.