Resources

Brain Cancer Action Week Forum

Presented on Friday 6 May 2016

This forum provided brain tumour patients and carers a chance to meet others in a similar situation and hear about developments in treatment. You can watch the presentations from the day below.

Topics discussed include:

  • Developments in personalised brain cancer treatment
  • Personal stories from patients and carers
  • Practical challenges: fatigue, rehab, returning to work The latest in paediatric brain cancers and late effects.
  • Psychological challenges: the caring role, living with uncertainty

The sessions were open to patients, carers or anyone interested in learning about brain cancer. For further support and information, please contact a cancer nurse on 13 11 20 or via email askanurse@cancervic.org.au.

Topic Presenter Link

Living High Grade - A personal story

Michelle Heaney View on YouTube

The Sally White Lecture: Developments in Brain Cancer Treatment

Prof. Mark Rosenthal, Medical Oncologist
A/Prof. Hui Gan, Medical Oncologist
View on YouTube
View on YouTube

Living Low Grade

Ben Leske
View on YouTube

Panel Discussion: Getting Back to Life
- returning to work/study/life roles
- managing fatigue

Helen Kugler, Physiotherapist
Joanne McLeod, Occupational Therapist
Dr Lawrence Cher, Neuro-oncologist
Facilitator : Di Legge
View on YouTube

The Carers' Journey - A personal story

Cheryl Waye View on YouTube
Finding support when & where it's needed Dr Danette Langbecker, Researcher
View on YouTube

Webinar: Cognitive effects of brain cancers

Presented on Tuesday 27 October 2015  

Brain tumours of all types present a number of challenging issues, for people diagnosed and their families. In addition to the physical and emotional health demands of the cancer experience, other changes affect thinking and memory, personality, speech and an ability to find words in conversation.

Accessing quality information can ease anxiety and help people continue doing the things they want to do. In this webinar, expert presenters discuss the kinds of cognitive effects and the practical strategies for managing them. Topics discussed include:

  • an overview of cognitive changes that may occur
  • exploring issues such as fatigue, sensory overload, changes to cognitive processing, word finding and loss of speech
  • practical suggestions about how individuals and their families can manage these changes
  • how to access reliable information, helpful programs and resources.

Updated: 27 Oct, 2016