We collect details of all cancers diagnosed on the Victorian Cancer Registry. The law (Cancer Act 1982) requires this so the State has accurate figures. Data has been collected since 1982. All information is confidential and held under tight security.
Interactive graphs & reports |
CanStats digests by topics |
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Statistics by local councilAverage new cases per year (2003-07). |
Victorian cancer slidesPowerPoint slides of 2006 statistics. |
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Cancer Survival Victoria 2007Compares 2004 with earlier years. |
Second Primary Cancers in VictoriaRisk of developing a second primary cancer. |
For each patient with cancer the registry collects:
Personal details, such as names and addresses are needed to make sure records are correct and not duplicated.
When any hospital diagnoses or treats someone with cancer it must, by law, send details to the registry. This also applies to pathology services and cancer screening registers.
Regular reports are available to the public (without names of patients or any other identifying information).
More details are given to the Victorian Department of Human Services, local governments, hospitals, doctors and researchers. This information doesn't include patient names.
Identified information (containing patient's names and other details) is available to:
Any person can contact the registry to ask whether we hold information about them and/or to access their records.
Researchers can ask for identified information about cancer patients (see forms and procedures below) but all requests must be approved by our Human Research Ethics Committee (HREC). This is a group of independent experts whose job is to weigh the public interest of the research against the individual interests in privacy. Permission will only be given if the project meets strict conditions, including:
Victorian Cancer Registry procedures and forms for data access (320kb)
Victorian Cancer Registry procedures and forms for data access (Zip file of Word docs 147kb)
If you'd like to find out more, contact the Director of Information Systems on (03) 9635 5318. Any complaints should also be addressed to this number. If your issues can't be resolved, call the Office of the Health Services Commissioner (HSC) on (03) 8601 5200 or 1800 136 066 (toll free). The HSC is an independent, impartial statutory authority with responsibility for health services and the privacy of health information in Victoria.
Victorian Family Cancer RegistryDatabase of families with inherited risk. |