On this page: Dry mouth | Changes in taste and appetite | Nausea, vomiting and weight loss | Mouth sores and ulcers | Difficulty swallowing | Bone and teeth damage | Communication and speech | Tracheostomy | Pain | Fatigue | Reviewers
Head and neck cancer, and its treatment, can cause many side effects that may be temporary or permanent. This page lists some possible side effects and ways to manage them. Cancer Council Helpline 13 11 20 has more information about side effects caused by chemotherapy and radiotherapy, ways to cope with changes in your eating, and managing pain.
A dry mouth can make chewing difficult and increases your risk of developing cavities in your teeth, so it's important to maintain good oral hygiene.
Mouth sores are common during chemotherapy and radiotherapy treatment. The sores, which can form on any soft tissue in your mouth, make it difficult to eat, talk and swallow.
If you have mouth sores, your doctor can treat them by giving you medicines that reduce the pain when you eat, drink or speak. You may also use pain-killers that can be applied directly to the mouth sores to numb them.
Treatment can affect your sense of taste and smell. It can take several months for your sense of taste to return to normal. You may never regain your full sense of smell. Taste changes may make you lose your appetite, or this can happen as a result of stress. Try to find ways to make mealtimes more appealing.
Feeling sick (nausea) and vomiting are common side effects of chemotherapy. Some people feel nauseous before, during or after treatment.
Eat small meals often – not eating can make nausea worse.
Many people with head and neck cancer have trouble swallowing (dysphagia) before or after treatment. Radiotherapy can cause dryness, pain, and changes to the strength of the muscles used in swallowing. Surgery may also reduce your ability to swallow. If swallowing is painful, ask your doctor about taking pain-killers.
You may also be able to use other types of soothing agents to prevent your mouth and throat from becoming too irritated.
A speech pathologist can assess how you swallow and suggest changes to your diet and swallowing action to help reduce any discomfort or concerns of food going down the wrong way (aspiration). If these problems persist, you may need tube feeding.
See the Laryngectomee Association of NSW's book for swallowing and chewing difficulties at www.stilltalking.org/#cookbook.
The side effects above may cause you to lose weight because you may find it difficult to eat. It's important to keep your body as well nourished as possible. This is because significant weight loss can lead to reduced energy and strength, and reduced quality of life. It's also important to maintain a good weight during treatment because a change in weight can influence the accuracy of radiotherapy or the dose of chemotherapy.
After treatment many people need a temporary feeding tube. In some cases, people experience long-term eating difficulties. For example, they may be at risk of aspirating food or drink into their lungs and need a different way of getting nutrition. Tube feeding (also called enteral feeding) can help you stay well-nourished if you are having difficulties eating.
If the treatment team thinks you'll need assistance with your nutrition during treatment, they'll recommend a feeding tube is placed before treatment. This will be discussed with you.
If you have a long-term feeding tube, flexible tubing may protrude 8 to 10 cm from your abdomen. Your health care team will advise you on how to keep the tube clean to prevent wear and leakage, ways to prevent blockages, and when the tubing needs to be replaced. A dietitian will tell you what kind of feeding formula and the amount you need to use.
Tube feeding helps control your food intake (nutrition), fluid intake (hydration) and your overall wellbeing. Many people find that having a feeding tube eases the discomfort of eating and the pressure of having to eat meals. If medications can't be swallowed, these can also be given through the feeding tube.
However, having a feeding tube inserted is a significant change, and it's common to feel upset about it. Talking to your family, a counsellor, dietitian or nurse may help you adjust to the change.
Radiotherapy to the head and neck can affect your teeth and bones, possibly causing osteoradionecrosis (ORN). In most cases, your health care
team will include a dentist who will take measures to prevent damage before treatment begins.
If you do get ORN, your doctors may treat it with surgery, antibiotics or hyperbaric oxygen treatment. This delivers concentrated oxygen to the bone to help it heal. For this treatment, you'll sit or lie in a pressurised chamber while oxygen is pumped in for you to breathe.
Communication is one of the most important parts of life. Most people take their ability to communicate for granted. If you lose your voice or your ability to speak clearly, it's natural to feel distressed, frustrated and angry at times.
People around you may need to learn new ways to communicate with you. It will probably help them to take more time to listen carefully. If your voice or speech has changed, some people might pretend to understand what you're saying so they don't upset you or because they're embarrassed to say they don't understand. It can be frustrating when people aren't prepared to take extra time to communicate, and you may feel uncomfortable or alienated.
It's important for your family and friends to provide you with understanding, sympathy and support.
Some people lose the ability to speak clearly or produce voice due to surgery to their mouth or the removal of their voice box. Immediately after surgery, you can communicate in other ways. You may find it helpful to:
You will work with a speech pathologist to improve your speech and teach you strategies for communicating with your family and friends. Although this can be challenging sometimes, most people who've had surgery are able to learn techniques to talk again. A counsellor or social worker can help you address any problems or frustrations.
If you're learning to talk after a total laryngectomy, there are three main methods your speech pathologist may try with you:
Oesophageal speech - You swallow air and force it up through your oesophagus to produce a voice like a lowpitched burp. Most people find this technique difficult to learn.
Tracheoesophageal speech - Your surgeon may create a puncture between your trachea and oesophagus during the laryngectomy or later on. Your speech pathologist can then fit you with a voice prosthesis (or valve) to direct air from your trachea into the oesophagus. This creates a low-pitch, ‘throaty' voice.
Mechanical speech - A battery-powered device (such as an electrolarynx) creates an external vibrating sound when it's held against the neck or cheek or placed inside the mouth. You press a button attached to the device when you want to speak.
Whichever method you choose, talking will take time and practice. You'll also have to get used to the way your new voice sounds. If you're feeling self-conscious about the change, counselling may help.
A tracheostomy is an operation to create an artificial opening (stoma) through the neck into the windpipe (trachea). This opening, which looks like a small hole, allows you to breathe. If you're having another surgical procedure, the tracheostomy is usually done at the same time under general anaesthetic. The stoma may be temporary or permanent, and it may have tubes inserted in it.
If you have a tracheostomy tube, your trachea is still connected with your upper airway. A plastic outer tube is inserted in the hole to keep it from closing. An inner tube can be removed for cleaning.
The tubes can block without regular cleaning and suctioning. Your health care team will do this, and they'll show you how to keep the tubes clean. They'll also advise what products to use to keep your airway warm and moist, which is very important.
It's unlikely that you'll be able to speak at first, because for most patients, air won't pass up through the tube into the voice box and mouth. However, some patients who have a small tube or a tube with a hole (fenestrated tracheostomy tube) will be able to speak. Your nursing staff or speech pathologist will teach you how to achieve voice with these tubes.
After a recovery period, the tracheostomy tube will probably be removed and the stoma will close up. At first your voice may be weak and breathy, but it should return to normal once the stoma has healed.
Occasionally, people need a tracheostomy tube for several weeks during radiotherapy or on a permanent basis. Your health care team will discuss this with you if needed.
People who've a total laryngectomy breathe through a permanent stoma. During the laryngectomy, the trachea is stitched permanently to an opening at the front of the neck and is no longer connected to the mouth and nose in the upper airway. You may have a tube inserted into the stoma immediately after the surgery. This makes sure the stoma stays the same size and keeps your airway open for breathing while you're healing. Your nurses will teach you and your carers how to clean the tube.
You'll probably be able to remove the tube during the day, and eventually you probably won't need it at all. Your speech pathologist or nurse
will show you products to cover the stoma and provide heat and moisture for the trachea. Feeling embarrassed or self-conscious about the way the stoma makes you look and speak isn't unusual. Addressing concerns may help you come to terms with the change.
For more information about stomas, see the Laryngectomee Association of NSW's booklet You Can Say That Again, available
from Cancer Council Helpline 13 11 20 or www.stilltalking.org.
You'll no longer be able to hold your breath if you have a permanent stoma. Water sports aren't recommended because water can get into your lungs and cause drowning.