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Victorian Cancer Registry

Accessing and requesting data

Data requests

To make a request for VCR data, fill in the form below.

What service would you like VCR to provide

Aggregated summary statistical report (e.g. summary data presented in tables)
Detailed report with each patient presented on an individual line
Identifiable patient-level data
Data linkage
Other

Required

Contact person details

First name

Required

Last name

Required

Organisation / Institution

Required

Division (if applicable) (optional)

Address

Required

Suburb

Required

Postcode

Required

State / Territory (optional)

Country

Required

Email address

RequiredPlease enter a valid email address

Mobile phone (optional)

Landline phone (optional)

Primary purpose of data request- what will it be used for? (Required) (optional)

Data linkage
Grant application
Investigation
Media campaign/Public information
Report
Research
Other

If other, please provide further detail below (optional)

Brief project description

Project title

Required

Brief project description - what do you want to do?

Please include aims and hypotheses (one paragraph or no more than 500 words).

Required

Who do you anticipate will have access to the output of this work? (Required)

Health Service- Clinical
Health Service-Management
Integrated Cancer Services
Consumers
State Government
Federal Government
Industry
Community Health
Public (open access)
Public (restricted access e.g. journal subscription required)
Other

Required

If other, please provide further detail below (optional)

When do you need the data? (optional)

Reason for data urgency? (optional)

Lead Investigator details

Click here if the lead investigator is the same as the contact person (optional)

First name (optional)

Last name (optional)

Organisation (optional)

Division (if applicable) (optional)

Address (optional)

Suburb (optional)

Postcode (optional)

State / Territory (optional)

Country (optional)

Email address (optional)

Please enter a valid email address

Phone mobile (optional)

Landline phone (optional)

Ethical review

Status of Ethics review (optional)

Approved
Pending
Yet to be submitted

Primary Ethics Committee reviewing the application (optional)

(Please list)

HREC approval ID (optional)

Date ethics certificate obtained (optional)

Attachments

Attachments should be one of these types: PDF, DOC, DOCX, XLS, XLSX, TXT, JPG, GIF, PNG and less the 3MB each.

Protocol (optional)

(including data analysis plan)

Filename can contain only alphanumeric characters and space .

Ethics approval certificate (optional)

Filename can contain only alphanumeric characters and space .

Ethics submission forms (optional)

Filename can contain only alphanumeric characters and space .

Any relevant documents to support this application (optional)

Filename can contain only alphanumeric characters and space .

Filename can contain only alphanumeric characters and space .

Data sets to which you would like to link

Data set 1

Detail of dataset 1 (optional)

Number of records in dataset 1 (optional)

List data fields available for linkage (optional)

Data set 2

Detail of dataset 2 (optional)

Number of records in dataset 2 (optional)

List data fields available for linkage (optional)

Data set 3

Detail of dataset 3 (optional)

Number of records in dataset 3 (optional)

List data fields available for linkage (optional)

Data set 4

Detail of dataset 4 (optional)

Number of records in dataset 4 (optional)

List data fields available for linkage (optional)

Data set 5

Detail of dataset 5 (optional)

Number of records in dataset 5 (optional)

List data fields available for linkage (optional)

Contact with VCR Data Linkage Service

Have you already been in contact with VCR Data Linkage Coordinator to discuss your proposal? (optional)

Yes
No

If not, the Data Linkage Coordinator will be in touch to discuss your request.

Which VCR data do you require?

For a list of available data elements, please see the data elements reference page.

Tumour characteristics (optional)

Basis of diagnosis
Behaviour
Gleason score 1
Gleason score 2
Gleason score total
Grade
Laterality
Melanoma level
Melanoma subsite
Melanoma thickness
Morphology (4-digit)
Morphology (5-digit)
Nodes positive
Nodes taken
Primary site (ICD10 3-digit)
Primary site (ICD10 4-digit)
Primary site (ICDO-3 3-digit)
Primary site (ICDO-3 4-digit)
Sentinel nodes positive
Sentinel nodes taken
Stage (VCR-derived)
TNM-T stage (VCR-derived)
TNM-N stage (VCR-derived)
TNM-M stage (VCR-derived)
Tumour size

Biomarkers (optional)

Estrogen receptor status (ER conclusion)
Human epithelial growth factor receptor 2 (HER2) status
Human epithelial growth factor receptor 2 (HER2) test type
Progesterone receptor (PR conclusion)

Demographics (optional)

Aboriginality
Address at diagnosis
Address on most recent notification
Age at diagnosis
Age at diagnosis (Year of birth only)
Age group at diagnosis (5-year)
Age group at diagnosis (10-year)
Birth region
Country of birth
Date of birth
Sex

Patient Identifier (optional)

Medicare
Patient name

Other identifier (optional)

Doctor Medicare provider number
Doctor address
Doctor name
GP address
GP name
Notifier name
Pathology specimen number
UR number

Pathology source record (optional)

Specimen code (VCR)

Dates (optional)

Date of diagnosis
Date of hospital admission
Pathology specimen date
Year of diagnosis

Death (optional)

Age at death
'Cause of death flag - Ca vs Non-Ca' derived variable from COD
Date of death
Vital Status
Year of death

Geography (at diagnosis) (optional)

Greater Melbourne flag (ASGS2011)
Greater Melbourne flag (ASGS2016)
ICS region
Local government area (ASGS2011)
Local government area (2016)
Mesh block (ASGS 2011)
Mesh block (ASGS 2016)
Primary health network
Remoteness category (2011)
Remoteness category (2016)
SA1 (Statistical area ASGS 2011)
SA1 (Statistical area ASGS 2016)
SA2 (Statistical area ASGS 2011)
SA2 (Statistical area ASGS 2016)
SA3 (Statistical area ASGS 2011)
SA3 (Statistical area ASGS 2016)
SA4 (Statistical area ASGS 2011)
SA4 (Statistical area ASGS 2016)
SEIFA census year
SEIFA index of relative socioeconomic disadvantage
SEIFA quintile
SLA (statistical local area)
State electoral district
Tumour postcode
Tumour suburb

Reporting (optional)

Childhood cancer subgroups
Haematological cancer groups

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RAP

Cancer Council Victoria would like to acknowledge the traditional custodians of the land on which we live and work. We would also like to pay respect to the elders past and present and extend that respect to all other Aboriginal people.

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