Fatigue and Cancer - Easy Read
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Download now Cancer-related fatigue
Fatigue is when you feel very tired, weak, drained and worn out. Cancer-related fatigue is different to normal tiredness because it doesn’t always go away with rest or sleep. Some people describe it as mental and physical exhaustion. Research shows that most people experience fatigue after a cancer diagnosis.
Fatigue can be caused by:
- the cancer itself and cancer treatments
- medicine, such as pain relief
- side effects of treatment, like low red blood cells (anaemia) or pain
- changes to what you eat
- stress and mood changes, including depression
- sleeping difficulties
- a lack of physical activity
- other health problems, such as an infection.
Even though it is common, managing fatigue is an important part of cancer care. Talk to your health care team about support and treatment.
Symptoms
Fatigue affects people with cancer in different ways. The way you feel can change over time and fatigue may be different before, during and after treatment. Some symptoms may be:
Feeling fatigued does not usually mean the cancer has advanced. If you are concerned, speak to your doctor or call Cancer Council on 13 11 20.
The impact of fatigue
Fatigue can last throughout cancer treatment and for some time after it is finished. Energy levels usually improve over time. Most people find they feel better 6-12 months after treatment ends. For some people, fatigue can continue for a longer period of time.
Fatigue can be severe and distressing. Some people say fatigue is the most difficult side effect of cancer. Sometimes people might look well but still be experiencing severe fatigue. Fatigue can make it hard to do everyday things, creating feelings of frustration and isolation.
If you have continued feelings of anger or sadness, talk to your doctor. You may have low mood or depression, and treatment may help.
Managing fatigue
The first step in managing fatigue is working out how it affects you. Start by talking to your GP, nurse or specialist doctor about how you are feeling, including how long you have felt fatigued.
It may help to write down how you are feeling from day to day. This can help you to learn when you have the most and least energy. You may have tests to see what could be causing the fatigue. If possible, the health care team will treat conditions like pain or anaemia that might be contributing to the fatigue. You may need a referral to a specialist or a fatigue clinic (if available).
Tips to manage fatigue
The best way to manage fatigue will depend on your individual situation, but the following general tips may help you to manage day to day:
- Plan a loose daily schedule or routine based on how you are feeling.
- Save your energy for what you want or need to do most.
- Pace yourself. Try to attend to one thing at a time and include regular short breaks throughout the day. Rest when you need to.
- Eat as well as possible, drink lots of water, and avoid smoking and alcohol.
- Be physically active – ask your health care team how to exercise safely for your situation.
- Try relaxation and meditation techniques.
- If you can, ask family, friends or neighbours to help you.
- Listen to the podcast, The Thing About Cancer, for tips on how to manage fatigue, sleep and cancer.
- Your local council or social worker can put you in touch with organisations for help at home (such as house cleaning, meals or shopping). Sometimes these services are free. You can also call Cancer Council on 13 11 20.
- Remember fatigue usually gets better over time.
Looking after yourself
Sleep
Research shows that people experiencing cancer fatigue often have difficulty sleeping or sleep too much. This can make fatigue worse, so it is important to speak with your health care team.
It may help to set up a bedtime routine including relaxing activities, such as meditation. Avoid using computers, mobile phones or tablets in the evening, and keep naps during the day short. You might like to consider counselling or cognitive behavioural therapy (CBT) as these may help with fatigue and sleep problems.
Exercise
It is important to be as physically active as is safe before, during and after cancer treatment. Research shows that exercise can help manage ongoing effects of cancer and its treatment, including fatigue. Talk to your doctor about what is right for you, especially if you are living with bone cancer or advanced cancer.
Exercise physiologists and physiotherapists can help with safe, appropriate exercise plans. You may also be able to join a local community-based exercise class or group for people with cancer.
Learn more
Question checklist
Asking your doctor questions will help you make an informed choice about your treatment and care. You may want to include some of the questions below in your own list:
- What is causing the fatigue?
- Do I need a blood test to investigate the causes of the fatigue?
- Is there anything that I should avoid doing?
- What can help me to sleep better?
- When will I have more energy?
- Can a social worker or occupational therapist talk to me about help at home?
- What exercise or activity do you recommend?
- Can you refer me to a physiotherapist or exercise physiologist who works with cancer patients experiencing fatigue?
- Are there fatigue clinics or local group programs that I can access?
Fatigue and Cancer
Download our Fatigue and Cancer fact sheet to learn more
Download now
Expert content reviewers:
Dr Dani Bullen, Clinical Psychologist, Peter MacCallum Cancer Centre, VIC; Dr Keely Gordon-King, Psychologist, Cancer Council Queensland, QLD; Sharyn McGowan, Occupational Therapist, Bendigo Health, VIC; Catriona Nienaber, 13 11 20 Consultant, Cancer Council Western Australia, WA; Susan Sach, Consumer; Dr Carolina Sandler, Lecturer and Accredited Exercise Physiologist, Queensland University of Technology, Adjunct, University of New South Wales Fatigue Clinic, and Honorary Fellow, School of Public Health, University of Queensland, QLD; Professor Janette Vardy, Medical Oncologist, Concord Cancer Centre, Principal Research Fellow, University of Sydney, NSW; Juliet Viney, Consumer.
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The information on this webpage was adapted from Fatigue and Cancer - Information for people affected by cancer (2019 edition). This webpage was last updated in September 2021.