Help improve end of life decision-making

Participate in a research project

Please note we are recruiting participants with any type of terminal illness, not just cancer. 

We're looking for people with a terminal illness and family members of people with a terminal illness aged 18 and above who are involved in medical end-of-life decision-making to complete a 60 minute interview.

Making decisions about treatment can be difficult when you have a terminal illness. If you are a carer, you are likely to be involved in those decisions. These important decisions require knowledge and understanding from people with a terminal illness and their decision-makers about their legal rights.

Through a research project, Cancer Council Victoria is aiming to improve understanding of medical decision-making by people with a terminal illness and their decision makers, including what decision-making practices you use and what support would assist you to make decisions.

The research project called ‘Enhancing community knowledge and engagement with law at the end of life', is in conjunction with the Australian Centre for Health Law Research (at QUT), the University of Queensland, and Cancer Councils Queensland and NSW.

What is the research exploring?

This project explores how, and if, members of the community understand and act upon their legal right to participate in decisions about medical treatment for themselves or for their loved ones at the end of life.

Little is currently known about whether individuals know the law, or are able to exercise their legal rights to be involved in the process of making decisions about treatment. This research will enhance patient and family decision-making through a better understanding of legal rights, powers and duties and will improve the experiences of patients and families at the end of life.

What's involved?

You will take part in a face-to-face, telephone or Skype interview at a time and location convenient for you. The interview will last for about an hour.

To minimise any possible distress caused by talking about terminal illness and end of life, information on how to access counselling services will be offered.

How do I participate?

We would like to interview if you are in Victoria and are either:

  • An adult with a terminal illness who is involved in your own medical decision-making;
    or
  • An adult family member or carer, or bereaved carer, of an adult with a terminal illness who has witnessed or been involved in medical decision-making.

If you fit into one of these categories and you're interested to participate or to learn more please submit your contact details below and Deborah Lawson, legal policy advisor, Cancer Council Victoria will contact you by your preferred method.
Alternatively, feel free to contact Deborah Lawson on (03) 9514 6334 or email deborah.lawson@cancervic.org.au.

This research has been approved by Cancer Council Victoria's Human Research Ethics Committee, the QUT University Human Research Ethics Committee, and the University of Queensland Behavioural and Social Sciences Ethical Review Committee.

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