Links

Name

Description

ADSVIC - Asbestos Diseases Society of Victoria Inc

The Asbestos Diseases Society of Victoria is a volunteer run, registered not-for-profit organisation which provides peer based support for people who have been diagnosed with an asbestos related disease, their carers, families and friends, and bereaved carers, families and friends.

ALLG - Australasian Leukaemia and Lymphoma Group

The ALLG is an independent non-profit organisation established by clinicians who care for patients with leukaemia, lymphoma and related blood diseases. It aims to improve the treatment of these patients and to foster collaboration with other relevant groups both national and international.

ANZCTR - Australian and New Zealand Clinical Trial Register

A registry of clinical trials conducted in Australia.

ANZMTG - Australian and New Zealand Melanoma Trials Group

A multi-site collaborative national cancer clinical trials group that coordinates and conducts quality research for melanoma control.

ASCO - American Society of Clinical Oncology Clinician approved cancer information, some of which has been adapted from the clinicaltrials.gov website.
Australian Cancer Trials Online This is a free information service that displays the latest clinical trials in cancer care across Australia.
BCNA - Breast Cancer Network Australia

Breast Cancer Network Australia (BCNA) is the national voice of Australians personally affected by breast cancer.  Its role is to empower, inform, represent and link together people whose lives have been affected by breast cancer. 

Cancer Australia

Consumer information about clinical trials prepared by Cancer Australia, a Federal government agency working to reduce the impact of cancer on all Australians.

CTA - Cancer Trials Australia

This not-for-profit organisation based in Melbourne conducts early phase cancer clinical trials.

Cancer Voices

An Australian forum for people touched by all types of cancer.

CART-WHEEL - Center for Analysis of Rare Tumors

CART-WHEEL is building a registry for patients diagnosed with rare tumors or rare subtypes of common tumors. People from all over the world are invited to submit information about their tumor so that researchers can develop new insights into these understudied rare diseases.

Clinical Trials handbook

A simple, practical guide to the conduct of clinical trials to International standards of Good Clinical Practice (GCP) in the Australian context.

ClinicalTrials.gov

A registry of federally and privately supported clinical trials conducted in the United States and around the world.

Declaration of Helsinki, sixth revision (2008)

The World Medical Association (WMA) developed the Declaration of Helsinki as a statement of ethical principles for medical research involving human subjects, including research on identifiable human material and data.

Clinical trial glossary

Glossary of clinical trial terms prepared by the US National Institutes of Health.

ICS - Integrated Cancer Services

To ensure an integrated approach to service delivery, the Victorian Government established 3 metro and 5 regional ICS to focuses on delivering the right treatment and support to patients, as early as possible in their cancer journey.

ICTRP - International Clinical Trials Registry Platform

Hosted by the World Health Organization, you can use this website to search for clinical trials across registries from 9 different countries.

Medicines Australia

Questions and answers about clinical trials, prepared by the body representing the Australian pharmaceutical industry.

NCI - National Cancer Institute The NCI coordinates the National Cancer Program in the US. Their website contains useful information about cancer including discussion topics, statistics, a comprehensive cancer glossary and a database of cancer clinical trials.

NHMRC - National Health and Medical Research Council

The National Statement on Ethical Conduct in Human Research (2007) aims to promote ethically good human research and ensure participants are accorded the respect and protection that is due to them.

Nucleus Network

This not-for-profit organisation based in Melbourne conducts early phase clinical trials.

The Note for Guidance on Good Clinical Practice (CPMP/ICH/135/95)

An internationally accepted standard for the designing, conducting, recording and reporting of clinical trials.

onTrac@PeterMac Victorian Adolescent and Young Adult Cancer Service. onTrac@PeterMac is committed to ensuring that every young person living with cancer has access to multidisciplinary, developmentally targeted, tailored and culturally relevant oncology care.

VCA - Victorian Cancer Agency

The Victorian Cancer Agency has been established to facilitate cancer research across Victoria.

Victorian Health Records Act (2001)

The Health Records Act creates a framework to protect the privacy of individuals' health information. It regulates the collection and handling of health information.

X-Plain patient tutorial on clinical trials The Patient Education Institute have developed the X-Plain series of interactive patient tutorials to help patients understand information about their health care. The clinical trial tutorial gives a clear and comprehensive summary of issues relating to participating in a clinical trial, including the opportunity to test yourself along the way. To view the tutorial, click on the link, scroll down to Surgery and Treatment Procedures and click on Clinical Trials.

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