December 2016
What we do Send to a colleague Subscribe

Cancer Council Victoria's Clinical Network celebrates 40 years of connecting cancer clinicians

On Monday 28th November 2016, the Clinical Network celebrated their 40th year of connecting cancer clinicians from across Victoria. The event was attended by many new and longstanding Clinical Network members and was held at The European, 161 Spring St, Melbourne, and included presentations by;
  • Todd Harper - Chief Executive Officer, Cancer Council Victoria
  • A/Prof Jeremy Millar - Chair of the Clinical Network
  • A/Prof Raymond Snyder - recently retired Director of Medical Oncology, St Vincent's Hospital, and an inaugural Clinical Network member
Since its formation in 1976, the Clinical Network has utilised an influential and diverse body of clinical experts who inform Cancer Council policies and programs and employ a range of cooperative measures to optimise cancer care and patient outcomes for all Victorians.

Read more

Thank You

Victorian trials data longitudinal analysis

Longitudinal analysis of the Cancer Trials Management Scheme (CTMS) data is underway and aims to describe clinical trial activity in Victoria, since 2008. The CTMS has been in operation since 1988 and retrospectively awards funding to hospitals coordinating clinical trials. The purpose of this funding is to grow clinical trial capacity by financially supporting clinical trial units. In return for this funding sites submit comprehensive data on types of trials, recruitment figures and full time equivalent employees (FTE) working in clinical trials research. This is the only comprehensive collection of such data undertaken annually in Victoria. 

Looking at this data, we will be able to monitor trends in recruitment rate, patient accrual, and the availability and profile of clinical trials over the past 8 years. Analysis commenced in November this year and is anticipated to be completed in March 2017. A report of this analysis will be provided at the end of this time period.


Research: Patients and families needed for study into law at end of life

Cancer Council Victoria is partnering with the Australian Centre for Health Law Research (QUT), the University of Queensland and Cancer Councils NSW and Queensland to explore how people understand and act upon their legal right to participate in decisions about end of life care for themselves or for their loved ones.

We're looking for people with terminal cancer and family members of people with terminal cancer aged 18 and above who are involved in medical decision-making to complete an interview at a time and location convenient to them. We would be very grateful if you would print and display a copy of this poster in your health service, clinic or waiting room, as appropriate.

Read more

Law at the end of life

Closure of Lymphoedema clinics

Working in partnership with the Australasian Lymphology Association, Lymphoedema Association of Victoria and Breast Cancer Network Australia, Cancer Council Victoria wrote to the Minister for Health regarding the change to Lymphoedema services in Victoria in October. Lymphoedema services at Mercy Health and Eastern Health recently stopped taking new referrals. As a result, these organisations received complaints from clinicians and patients about the impact of these closures and the accessibility of lymphoedema services around the state.

With 20 per cent of cancer survivors likely to experience secondary lymphoedema, poor access to health services will result in unnecessary suffering of lymphoedema patients as well as worsening of the condition. We are advocating for Victorian health services to ensure patients experiencing symptoms either have access to outpatient lymphoedema services as part of their service delivery or refer patients to a service that has an acceptable waiting time and will not involve an out of pocket cost for the patient.


Victorian Patient Transport Assistance Scheme (VPTAS) review

In 2014 the Health Minister committed to reviewing the VPTAS every two years. The Department of Health and Human Services (DHHS) invited the Cancer Council Victoria and the VPTAS Alliance to attend consultation sessions in October, to contribute to the next VPTAS review. The consultants who ran the sessions are tasked with providing recommendations to DHHS, and the bulk of their work relates to the economic modelling for various changes to the current scheme such as increased reimbursements.

The VPTAS Alliance comprises more than 30 cancer, chronic disease and patient support agencies, all with a strong interest in supporting people who need to travel for treatment.

Read more

VPTAS

World Cancer Congress presentations

The World Cancer Congress is run by the Union for International Cancer Control (UICC) and takes place every two years in a different country, always hosted by a UICC member organisation. The conference is aligned with UICC's purpose statement of uniting the cancer community, to reduce the global cancer burden, to promote greater equity and to integrate cancer into the world's health and development agenda.

After an inspiring and memorable event in Melbourne in December 2014, UICC and its host organisations, the French League Against Cancer (La Ligue contre le Cancer) and the Alliance of African & Mediterranean French Speaking Leagues Against Cancer (ALIAM), were glad to stage the 2016 World Cancer Congress in Paris, France - from 31st October to 3rd November 2016 at the Palais des Congrès The Clinical Network was represented at the World Cancer Congress by A/Prof Jeremy Millar, Nicola Quin and Rachel Whiffen through the following rapid presentations:

  • Additional Funding Intervention Trials - A/Prof Jeremy Millar
  • Building the capacity of cancer clinicians as advocates for improved patient care - Rachel Whiffen
  • Addressing inequity in research funding for high mortality cancers - Nicola Quin
  • Medicinal Cannabis: a law reform case study from Cancer Council Victoria, Australia - Dr Deborah Lawson
Image: UICC 2016

Public consultation: National Statement on Ethical Conduct in Human Research, 2007

The National Statement provides guidelines for researchers, Human Research Ethics Committees (HRECs) and others conducting ethical review of research, and emphasises institutions’ responsibilities for the quality, safety and ethical acceptability of research that they sponsor or permit under their auspices.
 
Comments are invited on the content of Section 3 of the National Statement, which includes new introductory language, new and revised chapters 3.1 and 3.5, consequential changes to Section 5 and additions to the Glossary.

See here for more detail and the accompanying documentation.

Safety Monitoring and Reporting in Clinical Trials

NHMRC has issued new Guidance on safety monitoring and reporting in clinical trials. This Guidance will replace the existing 2009 Australian Human Ethics Committee Position Statement: Safety Monitoring and Reporting in Clinical Trials Involving Therapeutic Goods. The new Guidance reflects international best practice and was developed with input from researchers, human research ethics committees, the State and Territory jurisdictions and industry. You can read the Guidance here .

 

Clinical Trials

For more details on any of the initiatives in this email please contact:

Cancer Council Victoria's Clinical Network
Celebrating 40 years of connecting Victorian cancer clinicians

Address: 615 St Kilda Road, Melbourne, Vic 3004 Australia

Phone: +61 3 9514 6304 | Web: www.cancervic.org.au

Email: clinicalnetwork@cancervic.org.au

This email was sent by Cancer Council Victoria. Click here to unsubscribe.

For information regarding our privacy policy, please click here.